Patient Testimonies

I struggled for over 35 years before getting an EDS diagnosis, and by that time I had had recommendations for 14 different surgeries on many different joints. It is known that EDS patients often do not have favorable surgical outcomes. I have been beta testing regenerative treatments on myself, as well as trying different forms of physical therapy. It is frustrating that we are often offered irreversible surgeries that may worsen our symptoms, and that we end up with a different doctor for each joint, so that our wholistic picture of health is not seen in a comprehensive way. I want to be able to share my experiences with Prolotherapy and PRP restoring my mobility, and I am interested in what stem cells may have to offer in the future. I also want to share some specific physical therapy that helped me in my progress from being recliner bound to mobile. I am constantly reviewing research related to the problems that I experience, and would like to share this with the world so that doctors, patients, and media are aware of the difficulties faced by EDS patients in getting targeted and comprehensive treatments. I also want to compile more information on the many co-morbidities that accompany this disorder.