About Us ____

EDS Education and Empowerment Endeavors, Inc. is a 501(c)3 non-profit corporation dedicated to Empowering EDS Zebras with Education and Regenerative Solutions.

We are particularly focused on Hypermobile EDS (hEDS), the most common type, and one that no definitive gene has yet been identified.

Our mission

Our mission is to educate, empower, and advocate for individuals with EDS by providing comprehensive educational resources, sharing personal experiences, and promoting research into new and emerging treatments. We strive to facilitate access to regenerative therapies, such as prolotherapy, PRP, and stem cells to enhance mobility, quality of life, and foster a supportive community.

Our vision

To create a world of awareness and understanding for individuals with Ehlers Danlos Syndrome (EDS), where they have access to knowledge, support, and emerging regenerative treatments. We envision a society that recognizes the unique challenges of EDS and embraces innovative approaches beyond the confines of the medical industrial complex, fostering hope and improved outcomes for those affected.
Hi, I'm Tina

From The Founder____________

I struggled for over 35 years before getting an EDS diagnosis, and by that time I had had recommendations for 14 different surgeries on many different joints. It is known that EDS patients often do not have favorable surgical outcomes. I have been beta testing regenerative treatments on myself, as well as trying different forms of physical therapy. It is frustrating that we are often offered irreversible surgeries that may worsen our symptoms, and that we end up with a different doctor for each joint, so that our wholistic picture of health is not seen in a comprehensive way. I want to be able to share my experiences with Prolotherapy and PRP restoring my mobility, and I am interested in what stem cells may have to offer in the future. I also want to share some specific physical therapy that helped me in my progress from being recliner bound to mobile. I am constantly reviewing research related to the problems that I experience, and would like to share this with the world so that doctors, patients, and media are aware of the difficulties faced by EDS patients in getting targeted and comprehensive treatments. I also want to compile more information on the many co-morbidities that accompany this disorder.

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We Educate

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