Support and Information Sites
Various sites for more information
The Ehlers-Danlos Society https://www.ehlers-danlos.com/
EDS Awareness ~ Chronic Pain Partners https://www.chronicpainpartners.com/
Ehlers-Danlos Syndrome Research Foundation https://www.edsrf.org/
Center for Ehlers-Danlos Syndrome Alliance https://cedsa.org/index.php
Ehlers Danlos News https://ehlersdanlosnews.com/
Caring Medical Prolotherapy for EDS and Hypermobility https://www.caringmedical.com/conditions/prolotherapy-eds-hypermobility/
Hypermobility MD https://www.hypermobilitymd.com/team-bendy-bodies
Connective Tissue Coalition https://www.connectivetissuecoalition.org/
Patient support group links
EDS Awareness Directory of Local Support Groups https://www.chronicpainpartners.com/
Inspire: Ehlers-Danlos Syndromes and Hypermobility Spectrum Disorders https://www.inspire.com/groups/eds-and-hsd/
The Mighty https://themighty.com/topic/ehlers-danlos-syndrome/groups (there are many subgroup topics within this forum)
Patients Like Me https://www.patientslikeme.com/conditions/ehlers-danlos-syndrome/overview
Oh, TWIST https://ohtwist.com/eds-resources/finding-support
The Pain Community https://paincommunity.org/forums/topic/ehlers-danlos-syndrome-2/
Rare Connect https://www.rareconnect.org/en/community/ehlers-danlos-syndrome